I would like to introduce you to a friend of mine, Jamie-Lee Dwyer who is 26 years old. When she was eleven, and her sister Samantha was ten, they were both diagnosed with Friedreich Ataxia.
This has not prevented Jamie-Lee from excelling at University, travelling overseas, jumping out of planes, and among other things, becoming an accomplished writer.
I thought that you might be interested in reading what she has to say about her life. When you read her articles, it seems like she is talking to you (an impressive and rare writing skill) and you may even hear yourself talking back. I know that I do! I have even felt compelled to write comments back. Here is her latest contribution:
THINK BEFORE YOU SPEAK
I decided to write this story because I want to show people that sometimes nice intentions are not so nice, they can be f∗∗∗∗∗ ! annoying. I don’t know how to say it in a more polite way, but let’s just say when you have people coming up to you every day just because you’re disabled it is beyond annoying. I hope this story helps people understand ‘our’ point of view a little more.
I was sitting opposite a friend from uni, sipping coffee and concentrating really hard on lifting the coffee cup up to my mouth. I was wearing one of my favourite dresses today and I’d be damned if I spilt it all over myself while I was out. We had just finished eating a delicious lunch at one of my local cafes and now we were catching up over coffee.
I’d forgotten how well I got on with this particular friend and I had just finished laughing like a lunatic when we were interrupted by a random middle-aged man.
The man knelt on one knee next to me and got right up close to me in my face. He looked at me through his square glasses with concerned eyes. ‘Darling, what’s happened to you then?’
∗Before you read more, please note that Jamie-Lee uses swearwords which may not be appreciated by all readers.